Beth's Stuff, of a Random Nature

Something and Nothing

Hmm. Christmas 2014 is upon me. I realised I've been stabbing myself with Humira for 5 years now, as I started, according to the diary, on 22st December 2009. Funny how you get used to things when you have to. I still don't like blood tests and have to look away when they stick the needle in  read more ...   (23/12/14)

A year of Humira

A year to the day. 22nd December last year I started on Humira, the other Crohn's treatments were just horrible, horrible and nasty, or plain zombifying! So it wasn't easy to start yet another drug and honestly I was scared witless. I wasn't too keen on injecting it myself either but it promised great things and there weren't many other options on the table. I actually chose it; I was asked Remicade or Humira? The former means going into hospital every 8weeks for half-a-day to have a mouse/human chimeric antibody infused into you. The latter inject yourself at home with the fully humanised antibody every two weeks with a point and click pen style injector.  read more ...   (22/12/10)

Good Days

We were in the park the other afternoon and bumped into some friends we haven't chatted to for a while, and one of them asked how I am... Which, thinking about it, made me realise how many good days I'm having now compared to just a few months ago. Back then I'd have said I thought I was 'alright, doing okay'. You know how it is, some people ask but they don't really want to know, it's just exchanging pleasantries. It's pretty rare now that I head for an afternoon siesta. I can do stuff around the house and not feel totally exhausted afterwards. Brain seems alive too. It's a nice feeling.   (24/09/10)

Little Steps

I haven't said anything about how I'm doing for a couple of months, so it must be time for an update.... Generally I'm doing okay. The weekly Humira shots are keeping me in remission. Well, as much as I'm probably going to be in remission anyway. Certainly asymptomatic. Can't be too sure what's going in on 'in there', if you know what I mean..., without looking. And I do not wish for another date with the camera for a while yet.  read more ...   (29/07/10)

Weekly Humira... update

I've been doing the shots weekly for 3weeks now so it's time for an update.  read more ...   (24/05/10)

Counting time

I feel I am just counting time until the next injection of 'Magic Goo'(tm), so I can feel vaguely human again.  read more ...   (30/04/10)

Weekly Humira...

The registrar seemed to think that going to weekly injections of Humira (adalimumab) was probably the way to go, but it would need to be approved by my Consultant as he couldn't authorise it himself - it's too expensive!  read more ...   (30/04/10)

Guessing

Whenever I go off to see a doctor, consultant, or surgeon, I like to have a good idea of what will happen, or what they'll have in the Goodie Box. You know, have the answers to the questions, well the initial questions, before you ask them. Power and all that.  read more ...   (25/04/10)